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Evaluation of an Inflammatory Bowel Disease diet specific Question Prompt Sheet

Research Focus

The study aims to test the feasibility of a communication aid tool designed for people with IBD

 

The tool is a question prompt sheet (QPS) containing frequently asked questions related to food and eating with IBD

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Similar tools have been successful in other health settings, enhancing communication between patients and healthcare providers

What is involved?

If you wish to participate you will be asked to complete questionnaires before and after the visit to the dietitian and to test an IBD diet specific Question Prompt Sheet

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Before the visit:​

1. complete the Patient Activation Measure questionnaire (approx. 5 minutes)

2. read the Question Prompt Sheet ahead of the visit with the dietitian

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After the visit with your dietitian:

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3. Following the visit with your dietitian, you will be asked to complete the Patient Activation Measure a second time, the Nutrition Dietetics Patient Outcome Questionnaire and a feedback form (approximately 15 minutes)

4. Once completed enter a draw to win one of five $100 vouchers

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Who can participate? 

People are eligible to participate if they:

- have a scheduled visit to a dietitian or who intend to schedule a visit within October 2024
- diagnosed with IBD
- 18+ years
- can read and speak English

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Useful information

Healthcare Plan Eligibility:

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- This plan grants a Medicare rebate for dietitian visits

- People with chronic conditions like IBD can access a healthcare plan through their GP

- Bulk billing might be arranged on a case by case scenario

 

For more details, reach out to the research team. They can provide additional information on how to access the service. 

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The benefits 

Direct Benefits:

- Enhanced communication with the dietitian

- Individualized care

- Discussion of priority questions and topics

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Contribution to Improving Services:

- The information you share may help improve services for people with IBD

 

Compensation:

- As compensation for your time (up to 30 minutes), you have a chance to enter a draw and win one of five $100 vouchers

Join the study

Copy and paste the link below and sign the electronic consent form on a secrue REDCap platform. 

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https://redcap.uow.edu.au/redcap/surveys/?s=XK3KD49N3TLWHLH4

Contact the research team

Do you have questions about the study? Email Chiara at  

Testimonials

Miss X

'so it's a great way to guide questions when you've got no idea where to start. I got through a lot in the session and they were happy to answer my questions'

Miss Y

'The information in regards to diversity was very helpful and as someone with IBD you can become afraid to mix things up with food intake. I now understand the diversity will help improve my gut' 

Mr Z

The question promt sheet is great, I have had IBD for many years and only in the last little while I have seen a dietician to help with my symptoms.  I would have loved something like this years ago!! 

Services

Should reading this material cause you any distress, please contact any of the below support services

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Crohn's and Colitis Helpline: 1800 138 029

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Healthdirect: 1300 60 60 24

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How the information will be used

Confidentiality:

- The information you share is confidential

- Only your answers from the questionnaires and feedback form will be collected

- Access to this data is restricted to the researchers involved in the study

 

Data Storage:

- All provided information will be securely stored for 5 years at the University of Wollongong

 

Future Studies and Dissemination:

- The information you provide will inform the content and design of future studies for people with IBD

- Study results will be published in relevant journals and presented at professional events (conferences)

Meet the research team

Lead Researcher 

Chiara is a Dietitian and PhD student at the University of Wollongong, Australia. She is interested in enhancing dietetics care provided to people with IBD

Principal

Investigator

Dr Kelly Lambert is an Associate Professor and Advanced APD at the University of Wollongong, Australia. She is passionate about clinical dietetics as well as educating future health professionals and consumers

Researcher

Professor Eleanor Beck has been a dietitian for more than 30 years and is a Fellow of Dietitians Australia

Ethics approval

This study has been reviewed by the Human Research Ethics Committee of the University of Wollongong. If you not happy with the way this research has been conducted, you can contact the Ethics Officer at the University on 02 4221 3386 or email rso-ethics@uow.edu.au  

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